Please Email Your Senator Today!
Dear Dr. Robert:
Our efforts last month to urge members of the US House of Representatives to support increases in NIH funding for research on headache disorders were highly successful. Twelve Representatives signed the Obey/Walsh letter. This is an outstanding result for the first mobilization of our numbers, and we are optimistic that it will be enough to have our message appended to the House appropriations bill.
It is now time to contact your US Senators for the same purpose. Unfortunately our window of opportunity is only narrowly open. The letter with Senators' signatures must be submitted by today, April 4th.
1.. Please take just 5 minutes RIGHT NOW to go directly to http://capwiz.com/headacheadvocacy/issues/alert/?alertid=11231066&PROCESS=Take+Action and send your message to your two US Senators
2.. Please forward this email right away to anyone else concerned about the inadequate state of care for patients with headache disorders.
Only with increased research will new effective treatments for headache disorders become available. And only with your help will such research activities increase to levels appropriate to the huge scale of this problem. The larger our voice, the greater will be our impact.
Thanks again for your efforts.
Robert Shapiro, MD, PhD> William Young, MD,> Teri Robert, PhD> Brad Klein, MD, MBA
[How cool is it that my docs are part of the Alliance for Headache Disorders Advocacy, the group that wrote this letter? Yay!]
About Me
- Joanna
- 25 years old, learning to live with New Daily Persistent Headache (NDPH) since 2004, chronic illness, grad school, special education, autism, music, photography
Headache Research
House Rabbit Network, Woburn, MA
House Rabbit Network, Woburn, MA
Twitter Updates
Helpful Sites
Personal Experiences, Etc.
- "A Head Case" by Michael J. Nelson
- A Chronic Dose
- A ClusterHead's Life
- Abi's Migrainous Wanderings
- Being Chronically Ill Is A Pill
- Chronic Babe
- Chronic Holiday
- Fly With Hope
- Getting Closer To Myself
- Give Me Something To Sing About
- Help For Headaches
- How To Cope With Pain - Blog
- Inner Dorothy
- Lady P's Cozy Corner
- Migraine Chick
- No Extended Warranty
- Pain in the Brain
- Paula Kamen - "All In My Head"
- Somebody Heal Me: Migraines
- The Daily Headache
- The Migraineur
- The Quest for the Perfect Pills
- The Sassy Lime
- This is my brain on migraines
- War On Headaches
- Weathering Migraine Storms
- Wind Lost
Disclaimer
Just for Fun
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2 comments:
Hey J. So wonderful to hear from you! You know, I didn't forget you and have thought of you a dozen times in the last little while and made mental notes to check up on your blog but never got around to it for various lazy reasons. Mostly I am either too exhausted or drugged out on headaches to read many blogs these last few months, or too busy at work or decorating my house.
It looks like I am a pretty good blogger, but I'm not. I do the bare minimum and don't do my share of visiting and commenting on others' blogs, which makes me feel immensely guilty!
So sad to hear you had a back injury. I hope you are healing and yes, it would be a living hell if your h/a's were brutal at the same time. Mine have been up and down. I have tried various drugs, mostly anti-depressants in the last few months...Celexa which made me an insomniac and I developed terrible migraines after 3 weeks on it (with no sleep). Now I am trying Effexor (an SNRI) which seems to be working a little but also stimulating at night. There is no happy drug that just works, unfortunately.
Otherwise, when I am not laying on the sofa all night I read decorating magazines and dream about a pretty world. Not much going on in my life other than that. Some family dramas...my Dad went into nursing home in Dec and he is slowly adjusting but it's been stressful for me, Mom, etc. I am going home in May to visit, can't wait!
Good luck with your new job...I am not sure what it entails but change is good as you figure out what you want to do/be!
Take care, ttfn, Terri xo
Hi Joanna, very nice to meet you. I am most pleased you are bookmarking my site. I am sorry to hear about your chronic headaches...I suffer from occasional migraines and can't imagine how debilitating daily headaches are. I was introduced to the chronic form years ago when I made a friend with daily migraines. It was the first time I'd ever heard of it. A few years back when my son was severely stressed he suffered from very frequent migraines; he'd cry and scream, then vomit and fall asleep. It took a couple of years and a visit to the pediatric neurologist to figure out it was stress-related in his case and by dealing with the issues causing him stress, the headaches went away ~ for the most part. He still gets them once in a while.
I hope your interest in autism carries you through a Masters in special ed. It almost seems like this is becoming a epidemic and who knows...maybe some day in the future autism will be the norm and the rest of us will be the weird ones!
Living and raising a kid with Asperger's Syndrome...I don't think I'd want to work with anyone in such close contact as what you are doing. It exhausts me after all these constant years. I do enjoy being socially active with the families and kids having autism though. In Edmonton, Alberta, where I lived until last summer, the autism society had a social group for Asperger teens and I used to accompany them simply because I got such a kick out of the group. It was nice to see them relax and have fun without worrying about what their peers were thinking.
I will read the rest of your blog within the next couple of days; it's late here and I wanted to say hi back to you. Have a good weekend and I do comment here and there but I also lurk...so even though you only think a few people are reading your blog, you might be surprised! Do you have one of those stat counters? That helps to keep track of how many visitors you are getting.
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